Yesterday late afternoon the boys and I were in the back driveway. Guess what??? Elan stood up all by himself! He was sitting then did his squat and stood up! Sooo proud of him!
Other exciting news -- we were told that Mass General will at least look over our stuff at the review board! This is one step closer to Proton Beam Therapy. I talked with our Kid's Path nurse Stephanie today and she was so kind. She was really positive about how we are going our own way and taking control of Elan's health. She said so many just go with what the doctors tell them. It is so true that the medical community has one way and just says "here is the treatment - any questions?". We really feel so blessed to have our faith. If we didn't who knows where Elan would be. SO many issues come out from the high dose chemo. It really is so experimental at the level he needs, quite scary. Hopefully a low dose option with PBT will do the trick!
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