Elan even takes a few steps if you hold him up. We feel good that he has a chance to return to crawling and maybe walking. Last night he fell asleep shortly before an RN visit, when we woke him up he was having a bad dream. He cried out! It was gut wrenching to hear. He was so scared. And his face was twisted in panic. His eye shocked and mouth open. - erik
Saturday, March 3, 2012
Elan has continued to improve today! He tried crawling, but it was hard with the IV in his hand again. His central line was leaking so they took it out. He read a half dozen books with vigor! Cynthia and Sharmel stopped by the room and Elan's favorite book during the visit was about Thumper from Bambi. He flipped the pages with his right hand and grabbed for the book frequently. We are so proud. He is really getting so much of his personality back, it is reassuring. "Reassuring, comforting, and encouraging" are the words of the day around here. Those are the qualities in people we appreciate the most! Whether it be from Dr's and staff or from friends. If people can't be that for us, then we don't want them around.
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I think I may have spoke with you's before, but can't remember for sure. I just wanted to say hello and that you's are in my thoughts and prayers. My son was diagnosed with at/rt at 6 months. We had a bumpy ride, complications from surgery, numerous failed swallow studies, failed shunts, failed central lines...the list goes on and on...however my son is now 5 with very limited negative effects from chemo and radiation. Even in regular school, aside from all the scars on his little head and body you would never know what he went through. I guess what I'm trying to say is hang in there, kids are so resilient and there are many at/rt survivors! My thoughts are with you's!
ReplyDeleteHi Jenny,
ReplyDeleteTHanks so much for your comment!!!! that is terrific news! What kind of resection did your son have and what type of radiation?