So Saturday we tried to make our first 5K event... not to run it mind you - but just to support. It was the cookies for kids cancer. WE did it in typical Miller fashion - went to wrong "Randolph Park" - not the park but actually was the neighborhood. Of course took us 20 min to figure this out and missed the fun run/walk 1 mile for kids. So we went to the cupcakes/bake sale area.
I was hoping to be able to network - sort of happened. We did run into Jennifer of Jennifer and Jeff who were in the PICU next to us with their 9 month old William. He was diagnosed with Wilkes disease and they found out through the ER like we did. They went in on Wed where we went in on Thursday.
William has just a touch which is so great! All they need to do is 1 day a week chemo on Wed. It is hard on her since they were originally told that all they needed was surgery and then being monitored but the day before they were released they noticed a few cells that looked like they could be cancerous around the area. They live on the Plaza - so the same neighborhood we used to live in. We really like them - Erik esp since he is a tennis player :) Talking at the 5K she said she is a CPA and one good thing is she was actually able to see the daylight in March! She also wants to get together - I will definitely take her up on that!
I also met Amy - the mom of Grier - who you see on flyers etc for the cookies for cancer in Charlotte. She was a great person and her mother too. They made us feel like we are at a great place with Bloome. They said several families actually have switched from Levine to Presby - the Bloome clinic. Really gave us a good feeling we are doing the best for Elan.
WE then headed home for lunch and naps etc. Erik and I went for a walk which was nice - just the two of us. We also watched at some p0int the video from Betsy M. regarding Vitamin C. She gave us a book too which I have only glanced through but can't harm Elan so worth a shot for sure!
Erik and I went out Sat night after putting the boys to bed and had wine and awesome meats at Roosters. Really nice.
Sun we went for a "hike" on the greenway - standard Sun am Miller thing to do. Finn took his tricycle - quite a hit as always. Elan had a big smile too and was kicking booth legs! took a great video of that. We then came home - fed boys - put down for nap - studied our Watchtower. Then woke boys up - got them ready and headed to meeting. Nice one since CO visit. BOth of them came up and gave hugs etc. They are both so kind! HE came over Friday with Malcom to encourage us - nice.
We then came home and fed boys then we ate the meal the Phelps provided plus my veggie diet soup. Nice. We have been eating out on the back porch since weather so nice. Really love our house! Finn has been coming to window though after being put to bed to "go potty" so Erik has to help with that.
This am around 4 Finn woke us up since he "peed out" - meaning peed so much came out of his pullup. Bummer! Erik is at work today and I am here with boys and my mom is feeding Elan and Finn playing "farm" in the playroom. Typical normal day - minus the fact mom is here and I am not on campus and Kenya not here... but normal in many ways :)
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