Thursday we had 3 people over for dinner who are renting from the same non-profit we are. We met them last week and so invited them over... of course we didn't take a photo! Jeremy is a sweetheart in his mid 20's who is getting radiation for a brain tumor, but only has to do focal. He has amazing friends that came with him this week. Their names are Nick and Athena and they are such kind people. They know each other from their church. It was a nice opportunity to encourage one another about what we are all going through.
Today, Friday, we got Finn out of Camp early so we could go to the local state park. They have hiking and swimming there. Elan's anti-nausea meeds make it hard for him to nap, so we just put the kids in the car and drove. The park charges $5 for parking so we decided to 'hike in'. The path was overgrown with poison ivy - Erik's arch nemesis! We think we made it unscathed. A mile later we reached the park and had to buy snacks and gatorade at the campground's store. By the time we got to the little lakeside beach we were hot and tired. While the kids and Karrin played in the lake and sand, Erik jogged 2 miles uphill to retrieve the car. (best laid plans of mice and men) At least the sweet guards at the gate didn't charge us for the quick pick-up operation.
Elan didn't want to do much walking or playing at the beach at first, but he came around and had Erik walk him a bit. It has been tough to get Elan to exercise. He often just begs us to hold him. We think he's all right, we just need to capitalize on the opportunities when he is in the mood. Sometimes we can get him in the mood by making it fun. We don't have a 'train table' here, like at home. He loves to stand and play at that. So, we are looking for one second-hand here (or something similar). That should help get him on his feet. We have had success getting him to push himself around on little tricycle things indoors and outdoors.
Today, Friday, we got Finn out of Camp early so we could go to the local state park. They have hiking and swimming there. Elan's anti-nausea meeds make it hard for him to nap, so we just put the kids in the car and drove. The park charges $5 for parking so we decided to 'hike in'. The path was overgrown with poison ivy - Erik's arch nemesis! We think we made it unscathed. A mile later we reached the park and had to buy snacks and gatorade at the campground's store. By the time we got to the little lakeside beach we were hot and tired. While the kids and Karrin played in the lake and sand, Erik jogged 2 miles uphill to retrieve the car. (best laid plans of mice and men) At least the sweet guards at the gate didn't charge us for the quick pick-up operation.
Elan didn't want to do much walking or playing at the beach at first, but he came around and had Erik walk him a bit. It has been tough to get Elan to exercise. He often just begs us to hold him. We think he's all right, we just need to capitalize on the opportunities when he is in the mood. Sometimes we can get him in the mood by making it fun. We don't have a 'train table' here, like at home. He loves to stand and play at that. So, we are looking for one second-hand here (or something similar). That should help get him on his feet. We have had success getting him to push himself around on little tricycle things indoors and outdoors.
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