Elan had his appointment at 8 AM today so starting writing this in the waiting room. If you haven't noticed it usually takes me days to finish one posting so I am sure kind of confusing once it finally is done - sorry but only way I can get it done!
I can't believe we are already doing day 17 - going so quickly! We have only to day 21 as full Cranial Spinal radiation and then going to the boost for a total of 33 days. The "boost" means just a focused beam on his area of cancer which will be given a much higher dose to the cancer area but leave everything else alone. The radiation so far was to get rid of any microscopic tumors but now it will attack the main area. WE had to do the CS since it had metastasized to a little further out from the original tumor so not wanting to chance it. This is his one shot so going full on. Still MUCH less side effects than any other option. It won't effect his main organs for one which is super!
Elan has been fighting a bit of a head cold but nothing to stop his treatment. He just has a runny nose and a bit of a cough. Today the nurses were so impressed with how much they suctioned out. Man, I love that kind of stuff too - and zits - I loved that :). Our kids are so healthy and rarely get sick - really bums me out since his body isn't just working on the radiation but also a cold. I really believe the cold is due to us taking him off of his Standard Process herbs and minerals for a week - but he is soldiering on! HE is back on them again and already doing much better!
He didn't throw up yesterday which is great! It is so tough to balance his nausea with his caloric intake - but he is maintaining his weight which is huge. Everyone here said he is really textbook and doing fantastic. They really know how to make everyone feel great here. I love how they are so reassuring and every time we ask if there is anything else they say "you two are amazing at what you are doing - doing more than anyone can". I am not sure if they say to everyone (most likely) but still feels good to hear.
We had to keep Finn from camp yesterday (Thursday) because we told him if he acted up he would have to stay home - well we had to follow through which ended up being a good thing. The camp counselors said he wasn't too bad but he was pushing kids to be first in line and we need to "nip this in the bud". He was quite happy after it all and listened to us the whole day too. He came with us to Elan's treatment and we tried to see a family/kid counselor at 2PM but somehow communication was messed up and we went to one only for adults. So now we have one on Tuesday for the family with the cancer center counselor.
I did talk with the adult one for a few minutes one on one and she was so kind and reassuring. I told her all of what we have gone through, the decisions we made and how we came to our conclusions. She kept saying that she has nothing to suggest but to keep doing what we are doing. She is so loving and said how healthy we are in how we are handling it and our relationship. She was so impressed with Erik and my decision making and kept saying " You two are really at a great place for all you are going through". I really think a lot has to do with our strong communication in the past which helps us now. Even though we don't have much time to communicate anymore! She said to just keep the positivity and positive people in our life and keep negative things at bay - which we have done to our best ability. Man, if I knew going to a shrink would be so amazingly "pat on the back" I would have gone at the age of 2!
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