Quick update.. Elan is now admitted to hospital. Past 2 days just not himself and acting lethargic . We had his regularly scheduled oncologist appt yesterday and not too concerned as still playing etc but he had woken up with a bit of a puffy face and had thrown up at breakfast. I attributed the throwing up to me pushing his food through his tube too fast (still feel that was the case for that one :)).
When we went to his regular appointment Dr. Bell didn't feel too concerned and attributed the puffiness to possible diet from the day before (I didn't buy that). But he did get better throughout the day even though not his perky laughing self. He didn't want to nap - just whimpered in his crib but Finn was in and out annoying him so could have been that too ;). I did give him some ibuprofen and it seemed to help. He went down at 7:35 and slept soundly until around 10:30 PM
My parents are still with us until they close on August 15th so we have been switching off who goes to our congergation meetings on Thursday night and who stays home with Elan so he can sleep a regular night's sleep. Erik stayed home since Elan was just in a funk and he wanted me to take Finn so we can continue or regular routine as best we can. When I came home to check in on Elan he had a poopy diaper so I woke him up to change him. It was a bit loose and he was so cranky. I nursed him and put him down in our bed and he threw up - not cool! This is because it could be a sign of swelling - now this isn't too concerning since we have been prepared for it. It could just be a bit of a bug as well since he is having the loose stools.... both are normal reactions to the radiation treatment but still not what we wanted since he has been so great and the first 2 weeks are the most critical.
WE put him back down and went to sleep. Around 3 we heard him and either he had a mini stroke or a night terror - we are not sure since he was in his room and in his crib. We brought him into our bed and he was just not himself but still acting as if it was a nightmare. we put him down again to bed and he didn't wake until 9:15 AM. He just was so clingy and a bit puffy in the face again so Erik called Dr. Douglas in Bloomington to get his read. He thinks it could be pre seieure activity so advised us to head to the ER. SO Erik called Dr. Bell and she said to come up to Hemby (the Children's hospital). We are now in the room waiting for the C Scan. Thankfully we hadn't fed Elan (i only nursed him a few minutes) so we don't have to wait forever if they think we need an MRI after that. Honestly he is acting just like a sick kid with a bug as he isn't touching his head or acting like he did back in February when this all started.
Erik is in bed with him reading books and streaming Courious George on Netflix on his cellphone (Netflix rocks now!).
Please keep us in your prayers.
xoxo
When we went to his regular appointment Dr. Bell didn't feel too concerned and attributed the puffiness to possible diet from the day before (I didn't buy that). But he did get better throughout the day even though not his perky laughing self. He didn't want to nap - just whimpered in his crib but Finn was in and out annoying him so could have been that too ;). I did give him some ibuprofen and it seemed to help. He went down at 7:35 and slept soundly until around 10:30 PM
My parents are still with us until they close on August 15th so we have been switching off who goes to our congergation meetings on Thursday night and who stays home with Elan so he can sleep a regular night's sleep. Erik stayed home since Elan was just in a funk and he wanted me to take Finn so we can continue or regular routine as best we can. When I came home to check in on Elan he had a poopy diaper so I woke him up to change him. It was a bit loose and he was so cranky. I nursed him and put him down in our bed and he threw up - not cool! This is because it could be a sign of swelling - now this isn't too concerning since we have been prepared for it. It could just be a bit of a bug as well since he is having the loose stools.... both are normal reactions to the radiation treatment but still not what we wanted since he has been so great and the first 2 weeks are the most critical.
WE put him back down and went to sleep. Around 3 we heard him and either he had a mini stroke or a night terror - we are not sure since he was in his room and in his crib. We brought him into our bed and he was just not himself but still acting as if it was a nightmare. we put him down again to bed and he didn't wake until 9:15 AM. He just was so clingy and a bit puffy in the face again so Erik called Dr. Douglas in Bloomington to get his read. He thinks it could be pre seieure activity so advised us to head to the ER. SO Erik called Dr. Bell and she said to come up to Hemby (the Children's hospital). We are now in the room waiting for the C Scan. Thankfully we hadn't fed Elan (i only nursed him a few minutes) so we don't have to wait forever if they think we need an MRI after that. Honestly he is acting just like a sick kid with a bug as he isn't touching his head or acting like he did back in February when this all started.
Erik is in bed with him reading books and streaming Courious George on Netflix on his cellphone (Netflix rocks now!).
Please keep us in your prayers.
xoxo
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